What’s on my mind? Facebook always asks. Today my mind is on Thankfulness, Gratefulness, Relief, Praising God for His Goodness….
Many of my friends know that my grandson, my heart, was born with a DiGeorge Syndrome. From Congestive Heart Failure in 2001 to a Kidney Stone this March, “everybody’s baby” has been through a lot. 8 hospitalizations in 14 years from Open Heart Surgery to Pneumonia to Pharyngeal Flap. 3 Broken Bones, Multiple Dental Surgeries and various other illnesses and injuries have been a real trial sometimes.
One particular issue has been ongoing since his teeth broke through his gums.
Dental issues are a big problem for most DiGeorge patients and our little guy has been no exception. Decay, erosion, and chipping has developed into a serious problem, but the biggest problem, I found out, was finding a dentist willing to tackle a case like this. Today we met him. Dr. Zachary Ellis. My relief, when he didn’t turn us away and say there was nothing he could do for us, was profound indeed. Salty drops ran down my cheeks despite my severe warning that they stay hidden. It took a dedicated case manager to two months to locate a dentist with the skills and willingness to take on this extreme case. We’d been turned away and left discouraged so much I feared there would be no enamel left to work on before we got help. I am so grateful to case manager, Natasha with MCNA, for not giving up, for staying in contact, for searching endlessly and following up with me. I am so thankful to God for this child, for the joy he brings, the messes he makes, the music he drives us crazy with, the never ending questions about anything and everything, the movies he makes me watch with him, the teenage attitude he exudes, and the love he bestows on us. For the way he reaches for my hand when he talks to me or wants me to come so he can show me the WWE’s latest high-jinks. The backwards hugs and how he plays with his dog Peanut like two kids. Momma, Nana & Papa love him so much & the feeling is mutual<3
our little man